The Unsung Heroes of Rare Disease: Caregivers
At Odin’s Heart Foundation, we’re driven by the remarkable resilience and love shown by caregivers, family members, and communities of children with rare genetic diseases. Our mission is inspired by the daily challenges caregivers face, from navigating complex medical needs to maintaining emotional strength for their loved ones. We believe that true support goes beyond financial assistance; it includes creating an environment of understanding, patience, and hope.
Our foundation is also deeply inspired by Odin, the loving big brother of Rhys, who has rare genetic disorders. Odin's compassionate spirit and unwavering support highlight the important role siblings play in caregiving. Through Odin’s example, we recognize the unique challenges siblings face, often taking on responsibilities well beyond their years. This insight fuels our commitment to supporting siblings as essential members of the caregiving journey.
Stone Family – Aleese and Rane Stone’s Story
Listen to the Story Sanctuary Podcast:
When my husband Rane Stone and I got married in May 2014, we knew we wanted to start a family. I found out early on that I was unable to get pregnant, so we decided to adopt. Fostering had always been on my husband’s heart, and I had thought about it too, so we knew it was the right path for us.